4. CongenitalHeartDefects.com
Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.
http://www.congenitalheartdefects.com |
5. Heart Disease Online
A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
http://www.heartdiseaseonline.com |
6. HLHS - Benjamin's Hope
A personal site dedicated to a son, and his fight against HLHS, hypoplastic left heart syndrome. A place to find hope and strength.
http://www.bensheart.com |
7. Imperfect Hearts
Includes interactive forums, Jara's story, and parent support.
http://www.imperfecthearts.net |
9. MedicineNet
Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments.
http://www.about-heartdisease.com |
10. Miami Children's Hospital
Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
http://www.pediatricheartsurgery.com |
11. The Children's Heart Society
Information about this non-profit, volunteer based support group, dedicated to helping families affected by Congenital Heart Disease/Defects.
http://www.childrensheart.org/ |
12. Vivian Lemke's HLHS Story
Hypoplastic Left Heart Syndrome (HLHS) information page and her life with her sisters in The Lemke Family.
http://www.lemkefamily.com |
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