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Batten
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Link(s):
1. Batten Disease Support and Research Association
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
http://www.bdsra.org/
2. Nathan's Battle
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
http://www.nathansbattle.com
3. The Luke and Rachel Batten Foundation
Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
http://lrbf.org
4. The Natey Foundation
Information for parents and families of Battens victims.
http://www.nateyfoundation.org/
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