2. A Wish for Wendy
Softball tournament benefiting Cystic Fibrosis research in honor of Wendy Carol Lipman who died 15 days after birth from cystic fibrosis.
http://wishforwendy.org |
4. Ambry Genetics
Testing for CF mutations. Offers a comprehensive screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing of exon.
http://www.ambrygen.com/ |
5. Billycook.com
Billy Cook battled cystic fibrosis and died. The site generates funding for patients of this deadly disease.
http://www.billycook.com |
6. Cute Petite Chic - A Cystic Fibrosis Web
Basic information with good description of sweat test, memorial page for a girl lost to CF at age 9, details of her last days and link to give in her memory through Great Strides.
http://www.cuteptchic.com |
7. Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
http://www.cysticfibrosismedicine.com |
10. Cystic Fibrosis Services
A subsidiary of the Cystic Fibrosis Foundation and a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF).
http://www.cfservicespharmacy.com/ |
11. Cystic-L
Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore.
http://Cystic-l.org |
12. CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones.
http://www.cysticfibrosis.com/ |
15. MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
http://www.mycysticfibrosis.com |
17. Providence Cystic Fibrosis Center
Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
http://www.cfcenter.net/ |
18. Sharktank.org
Dedicated research for a cure for cystic fibrosis.
http://www.sharktank.org |
19. The Breathing Room
Guidance about the art of living with cystic fibrosis.
http://www.thebreathingroom.org |
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