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1. Ectodermal Dysplasia Society Information about the organization as well as the ED condition. Includes links, news articles and contact details. http://www.ectodermaldysplasia.org/
2. National Foundation for Ectodermal Dysplasia ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services. http://www.nfed.org/
3. The Andy Fund Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene. http://www.andy.org.mx
