1. Australian MPS & Related Diseases Society
Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events.
http://www.mpssociety.org.au |
2. Genetic Interest Group
Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
http://www.gig.org.uk |
3. Hereditary Disease Foundation
Information about this non profit organization, news, newsletters, recommended reading and contact details.
http://www.hdfoundation.org |
4. Hereditary Hemorrhagic Telangiectasia Foundation International, Inc.
Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general public.
http://www.hht.org/ |
7. Lowe Syndrome Association
Information about this disease and the international organization that deals with it.
http://www.lowesyndrome.org |
8. Lysosomal Diseases New Zealand
Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
http://www.ldnz.org.nz |
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