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1. Ben's Dream Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter. http://www.bensdream.org
2. Bennett Children's Foundation Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support. http://www.helpachild.net
3. Children's Medical Research Foundation A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome. http://www.curekirby.org
