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Marfan Syndrome
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Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/
International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
http://www.marfanworld.org/
Jeanette Navia's Marfan Life Website
Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.
http://www.marfanlife.org
Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://www.jrmarfan58.com/
Marfan Association UK
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
http://www.marfan.org.uk
Marfan-List
Information about an e-mail mailing list. Also includes links to other online support groups.
http://www.marfan-list.org
National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
http://www.marfan.org/
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