2. Cell Therapy Research Foundation
Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.
http://www.celltherapy.com/ |
3. DMD Options
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
http://www.dmdoptions.com |
4. Dr. John R. Bach - The DMD/SMA/ALS Doc
This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
http://www.doctorbach.com/ |
6. Irina's Cozy Corner and SMA Page
Personal web page of a Russian woman living with Spinal Muscular Atrophy. Includes information on travel, recipes and psychology. English, Russian and Italian versions.
http://www.cozy-corner.com/ |
7. Justin's Locker Room
A site by, for, and about Justin Sokolowski, a young man with Werdnig Hoffman's disease or a form of SMA. Lots of pictures of friends and family (including his cats), plus pictures of Justin with many pro and semi-pro athletes he's met. Guestbook. Virginia.
http://www.justinsokolowski.net |
8. Kevin M. Rudolph's Exciting Site
Kevin, who has Duchenne Muscular Dystrophy, attends the University of Louisville and has a web business as well. Interests, hobbies and accomplishments plus lots of MD links. Kentucky.
http://www.turbokev.com |
9. Living For Today, Preparing For Tomorrow
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
http://www.livingfortoday.org |
10. Logan Paige Foundation for Myotonic Dystrophy
Dedicated to educating potential parents about Myotonic Dystrophy and genetic testing. Information about fundraising, both for research and to assist people who cannot afford testing, news, stories, and about Logan Paige.
http://www.loganpaige.org/ |
12. MDA Ride For Life
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
http://www.mdarideforlife.org/ |
13. Muscular Dystrophy Association (Australia)
Extensive information on the range of disorders, research information and many links to onsite publications. Also provides an international support network with a chat service dedicated for use by the worldwide Muscular Dystrophy community.
http://www.mda.org.au/ |
14. Muscular Dystrophy Association (South Australia)
The Muscular Dystrophy Association of South Australia provides a range of individually designed support services for all persons with muscular dystrophy and neuromuscular disorders, their families and their carer/support provider, including therapy, information, equipment loan and counselling.
http://www.mdasa.org.au/ |
15. Muscular Dystrophy Association (USA)
Voluntary health agency providing information and supporting research into neuromuscular diseases, including Muscular Dystrophy. The MDA site contains information about many forms of muscular dystrophy, including lists of ongoing clinical trials, an 'Ask the Experts' feature, and research updates.
http://www.mdausa.org/ |
18. Muscular Dystrophy Association Singapore
Muscular Dystrophy Association Singapore (MDAS) is a self-help organization committed to uplift the lives of people with Muscular Dystrophy.
http://www.mdas.org.sg |
19. Muscular Dystrophy Campaign Northern Ireland
Northern Ireland branch of Muscular Dystrophy Campaign includes news, events, staff profiles, information about the Regional Muscle Clinic and a web directory.
http://www.mdcni.org.uk/ |
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