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Anaphylaxis Foundation and Anaphylaxis Network of Canada
offers product alerts and registry for product recalls and research and advocacy data.
http://www.anaphylaxis.org/
Beryllium Support Group
information about chronic beryllium disease (CBD).
http://www.beryllium.org/
Canadian Organization for Rare Disorders
committed to the enhancement of the lives of all persons affected by rare disorders.
http://www.cord.ca/
Children Afflicted with Lymphatic Malformations - CALM
organization of parents and children afflicted with lymphatic malformations. Offers information, support, medical references, and encourages research to improve treatment.
http://www.staycalm.org/
Coeliac Society
U.K. society offers information and advice on coeliac disease.
http://www.coeliac.co.uk/
Dystonia Medical Research Foundation
works to increase an understanding of dystonia through research, awareness, and support.
http://www.dystonia-foundation.org/
Family Caregiver Alliance
info, education and services for families and professionals who care for adults with cognitive disorders, including Alzheimer's, stroke, Parkinson's, brain injury, brain tumors, Huntington's, and other brain impairments.
http://www.caregiver.org/
Friends' Health Connection
connects people who are currently experiencing or who have overcome the same disease, illness, handicap or injury in order to communicate for mutual support.
http://www.48friend.org/
Global Fund to Fight AIDS, Tuberculosis, and Malaria
works to mitigate the impact caused by HIV/AIDS, tuberculosis, and malaria in countries of need.
http://www.globalfundatm.org/
Histiocytosis Association of America Virtual Offices
online support for patients with histiocytosis their family and friends.
http://www.histio.org/
Hughes Syndrome Foundation
offers details of antiphospholipid syndrome and its treatment, research, and the foundation.
http://www.hughes-syndrome.org/
International Immunocompromised Host Society
Offering a multidisciplinary forum for scientific and clinical interchange to improve management of Immunocompromised Patients.
http://www.ichs.org/
International Society for the Study of Cough
Promotes research in cough and encourages the exchange of ideas and information.
http://www.issc.info/
Irritable Bowel Syndrome (IBS) Self Help Group
including a bulletin board, library, and web ring.
http://www.ibsgroup.org/
Klippel-Trenaunay Support Group
provides information about the group and about syndrome, and to provide families, adults with K-T, and professionals with links.
http://www.k-t.org/
Lois Joy Galler Foundation
acquires the funds needed to conduct research and develop methods of preventing or curing Hemolytic Uremic Syndrome (HUS).
http://www.loisjoygaller.org/
Magic Foundation
provides support services for the families of children afflicted with chronic and/or critical disorders, syndromes, and diseases that affect a child's growth.
http://www.magicfoundation.org/
Medsupport: Friends Supporting Friends
provides 24 hr. support on the net via forums, chats, information, newsletters and articles in text and real audio, pen pals, members stories, and our own television show.
http://www.medsupport.org/
Mia Hamm Foundation
supporting research of bone marrow diseases.
http://www.miafoundation.org/
National Aphasia Association
aphasia is an impairment of the ability to use or comprehend words - often a result of stroke or head injury.
http://www.aphasia.org/

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