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Organizations
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Link(s):
21. Magic Foundation
provides support services for the families of children afflicted with chronic and/or critical disorders, syndromes, and diseases that affect a child's growth.
http://www.magicfoundation.org/
22. Medsupport: Friends Supporting Friends
provides 24 hr. support on the net via forums, chats, information, newsletters and articles in text and real audio, pen pals, members stories, and our own television show.
http://www.medsupport.org/
23. Mia Hamm Foundation
supporting research of bone marrow diseases.
http://www.miafoundation.org/
24. Myoclonus Research Foundation

http://www.myoclonus.com/
25. National Aphasia Association
aphasia is an impairment of the ability to use or comprehend words - often a result of stroke or head injury.
http://www.aphasia.org/
26. National Association for Down Syndrome (NADS)
news, resources, and scientific information related to down syndrome from NADS, a not-for-profit organization serving people in the Chicago metropolitan area.
http://www.nads.org/
27. National Association for Incontinence

http://www.nafc.org/
28. National Eosinophilia-Myalgia Syndrome Network
supporting EMS sufferers and their families and working to increase public awareness of the illness caused by consumption of contaminated L-tryptophan supplements.
http://www.nemsn.org/
29. National Gaucher Foundation

http://www.gaucherdisease.org/
30. National Keratoconus Foundation
general information keratoconus, an ailment of the eye.
http://www.nkcf.org/
31. National Organization for Rare Disorders (NORD)
voluntary health organizations dedicated to providing information on the prevention, treatment, and cure of rare 'orphan diseases.'
http://www.rarediseases.org/
32. National Pediculosis Association
national clearing house on head lice and scabies issues.
http://www.headlice.org/
33. National Reye's Syndrome Foundation, Inc.
provides research and awareness for this liver disease.
http://www.reyessyndrome.org/
34. Nevus Network
support group for individuals with giant congenital nevi and their families.
http://www.nevusnetwork.org/
35. Parent to Parent of Georgia, Inc.
provides support and information to parents who have a child with a disability or special health care need.
http://www.parenttoparentofga.org/
36. Patient Organization for Primary Immune Deficiencies (IPOPI)
chat, conferencing, member organizations around the world, great resources on the various immune deficiency diseases.
http://www.ipopi.org/
37. Pituitary Tumor Network Association
dedicated to support, pursue, encourage, promote, and, where possible, fund research on pituitary tumors in a sustained and full-time effort to find a cure for pituitary diseases.
http://www.pituitary.com/
38. Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
interdisciplinary association for the advancement of rehabilitation and assistive technologies.
http://www.resna.org/
39. Society for Light Treatment and Biological Rhytms - SLTBR
dedicated to fostering research, professional development, and clinical applications in the fields of light therapy and biological rhythms.
http://www.sltbr.org/
40. Stevens Johnson Syndrome Foundation
provides medical communities and the public with information and support.
http://www.stevensjohnsonsyndrome.net/

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