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National Association for Down Syndrome (NADS)
news, resources, and scientific information related to down syndrome from NADS, a not-for-profit organization serving people in the Chicago metropolitan area.
http://www.nads.org/

National Eosinophilia-Myalgia Syndrome Network
supporting EMS sufferers and their families and working to increase public awareness of the illness caused by consumption of contaminated L-tryptophan supplements.
http://www.nemsn.org/

National Keratoconus Foundation
general information keratoconus, an ailment of the eye.
http://www.nkcf.org/

National Organization for Rare Disorders (NORD)
voluntary health organizations dedicated to providing information on the prevention, treatment, and cure of rare 'orphan diseases.'
http://www.rarediseases.org/

National Pediculosis Association
national clearing house on head lice and scabies issues.
http://www.headlice.org/

National Reye's Syndrome Foundation, Inc.
provides research and awareness for this liver disease.
http://www.reyessyndrome.org/

Nevus Network
support group for individuals with giant congenital nevi and their families.
http://www.nevusnetwork.org/

Parent to Parent of Georgia, Inc.
provides support and information to parents who have a child with a disability or special health care need.
http://www.parenttoparentofga.org/

Patient Organization for Primary Immune Deficiencies (IPOPI)
chat, conferencing, member organizations around the world, great resources on the various immune deficiency diseases.
http://www.ipopi.org/

Pituitary Tumor Network Association
dedicated to support, pursue, encourage, promote, and, where possible, fund research on pituitary tumors in a sustained and full-time effort to find a cure for pituitary diseases.
http://www.pituitary.com/

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
interdisciplinary association for the advancement of rehabilitation and assistive technologies.
http://www.resna.org/

Society for Light Treatment and Biological Rhytms - SLTBR
dedicated to fostering research, professional development, and clinical applications in the fields of light therapy and biological rhythms.
http://www.sltbr.org/

Stevens Johnson Syndrome Foundation
provides medical communities and the public with information and support.
http://www.stevensjohnsonsyndrome.net/

The American Hyperacusis Association
Dedicated to increasing public and professional awareness of hyperacusis and its diagnosis, evaluation, and management.
http://www.americanhyperacusis.com/

The Hormone Foundation
Promotes the prevention, diagnosis, and treatment of hormone-related conditions and diseases.
http://www.hormone.org/

The Melungeon Health Education and Support Network
Dedicated to the health of Melungeon descendants who have one or more of the five major Mediterranean illnesses, including Beh?et's Syndrome and Sarcoidosis.
http://www.melungeonhealth.org/

The National Pancreas Foundatio
Committed to advancing education and research related to diseases of the pancreas, including pancreatitis and pancreatic cancer.
http://www.pancreasfoundation.org/

Tourette Syndrome Association of New Jersey, Inc.
offering information and support groups.
http://www.tsanj.org/

Transverse Myelitis Association
not-for-profit organization providing support to families affected by TM.
http://www.myelitis.org/

Wobblers Anonymouse
support group for those damaged by gentamicin. Symptoms include oscillopsia and loss of balance.
http://www.wobblers.com/

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