Our directory is the online resource for Disease and Health providing AIDS, adrenal, birth defects, bladder disease, blood disorders, cancer, cosmetic surgery, insulin resistance, nutrition disorders and much more.
Chase's Story Personal account of one child's experience of this condition. Includes photographs. http://www.pierrerobin.com
Pierre Robin Network Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts. http://www.pierrerobin.org